So Monday September 21st was a big day for me. Golden Moms and ACCESS (Advancing Childhood Cancer Experience, Science, and Survivorship) hosted a rally on Parliament Hill to raise awareness for childhood cancer. We had nearly 65 people in attendance! Because I am in a wheelchair, we were able to drive right up to the Eternal Flame and got dropped off. We went through the security gates where the car was searched and we showed our ID’s. then we were escorted up to the hill. Once my Dad dropped us off, he was escorted back out. It was the same routine when he came to pick us up. In order to do this, we had to give our names and licence plate number in advance, but somehow that information got lost. We were lucky though, and our ID’s were enough to get us through. This was a great service to get to the hill without having to worry about parking or walking a far distance pushing the chair. Very accessibility-friendly.
The rally kicked off around noon. Caroline Wai gave a great introduction. Samantha Taylor kept the day going as the MC of the event. Stories of strength, tragedy, and hope were shared throughout the day by survivors, fighters and family members. At about 12:30, a few us left for the West Block.
This was because we were asked to speak at a caucus meeting in front of MPs and Senators on behalf of ACCESS to help secure their renewed funding. We had to go through security first. I am happy to report that security was very respectful and kind. They asked permission when touching me or my chair and guided me on what I needed to do in a gentle and reassuring manner. You have no idea how many times at the airport they will just grab my chair and move me without asking. I’m pleased to say this wasn’t the case.
When we arrived at the room, MP Anita Vandenbeld and began and led the meeting. ACCESS representatives Christine Williams, Caroline Wai, and Adrienne Co-Dyre kicked it off by explaining what ACCESS does, and why continued funding is so important. So much has been accomplished thus far but so much remains to be done.
Next, I told the story of my cancer journey and what might have been had ACCESS been around at the time of my treatment. I made a plea for renewed funding for ACCESS citing the key role it plays in sparing suffering for children who are now on the lifelong cancer journey and for thousands of children yet to be diagnosed. I’m not going to lie, I was nervous for this presentation. I felt a lot of pressure (mostly from myself) to do well.
When I was done speaking I was proud, and there were some damp eyes in the room. I was told by several listeners that my words were powerful. I am happy to do whatever I can to help organizations like ACCESS. As I said in my speech, (see below) it may be too late to avoid complications for me but it isn’t for the thousands of kids yet to be diagnosed and the children fighting for their lives right now. It’s for them that I put myself through the trauma over and over again. They need someone to give them a voice, and I am pleased to do it, as long as they will have me.
After I was done, Michel Duval spoke passionately about his experiences as a physician. Julie Jewett, her husband Jeff, with their daughter Lily addressed why better treatments are so desperately needed. Lily is such an inspiration and I am proud to say I know her and her family.
We received some great feedback and gained commitments of support from everyone in the room. It was even said, and I quote, “Not funding this program would be a sin.” Our words were emotional and moving. Everyone in the meeting on behalf of ACCESS did their part to help secure future funding. The MPs in attendance were all very moved and touched by our stories, numbers, and facts. There were teary eyes and importantly, more understanding of the need for ACCESS. After the meeting ended, we all took a group picture. MPs moved to my side so I could participate, as it was more accessible for my wheelchair. Seems like a small gesture, but it makes a big difference for me.
On our way out we were able to catch the end of the rally. I was glad I did! We got to participate in some deep breathing exercises led by my friend Ollie Acosta-Pickering. The rally was led on the lawn, but very close to the pavement so I was still able to be a part of it despite the fact I don’t roll too well on grass.
What ACCESS does is amazing. It connects the childhood cancer fight throughout the country. Your geographical location, your postal code, should never make a difference in your care options. ACCESS provides equality to children across this nation. It does so much good work and makes a significant difference in the lives of children now and in the future. Let’s cross our fingers that the funding gets renewed!
In this article I am also sharing the speech I gave. Obviously it won’t be word for word, as I spoke a bit from the heart, but it is the just of what I said to the MPs and Senators. I would love to hear your opinions on what I had to say so please comment!
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